Emailing: picture of ricky.eml
Sunday,October 29, 2006
Edition: METROPOLITAN, Section: NATIONAL/WORLD, Page A1
WOMAN BATTLES BLINDNESS, HER PAST | Rare eye illness encroaches on her life
Christine McDonald stares into darkness as her fingers spider-walk toward trays of pen parts.
Plastic tube. Insert cartridge. Push in plug. Twist on metal thingamajig. Done.
Again.
She brushes a strand of blond hair from her forehead, listens to the hum of a soda machine and to the people around her. She recognizes them by their voices. One lady who can see a little always holds a running commentary. Im going to tell you who so-and-so looks like, she tells Christine. You ever see Roger Rabbit? Christine nods, Yeah. Well, there you go, the woman says.
Another woman adds poo to everyones name.
"Morning, Christinepoo," she shouts.
"Morning," Christine responds in a chirpy Southern-tinged voice.
Plastic tube. Insert cartridge. Push in plug. Twist on metal thingamajig.
Again.
Never in her wildest drug-induced hallucinations did Christine, 37, see herself here at the Alphapointe Association for the Blind, a Kansas City nonprofit agency that works to rehabilitate blind and visually impaired people. She puts together pens in Alphapointes work adjustment center, which provides entry-level training.
When she was homeless, she turned tricks, smoked crack and slept in parks and abandoned cars, but this is the most challenging time of her life. The monotony of assembling pens drains Christine. Her earnings, about $35 per 1,000 assembled pens, a days worth of work, and her monthly $600 disability check dont fully provide for her and her 6-month-old baby, Ricky. She wont complain, wont ask for anything but a chance to find a job now that she has done her time, stayed clean and sober. Alphapointe, she knows, provides that chance.
Christine lost her sight in June 2005. She has never seen Ricky. She felt him kicking inside her and pushing to get out. Heard him when he was born, kissed his forehead and held him for all she was good for. Perhaps she was denied the sight of her son as the price for the mistakes of her past. Prostitution, drug addiction. Now blindness. She doesnt know, wont dwell on the whys in life. She made choices then. She makes choices now.
Christine sees Ricky in her dreams amid vivid colors. Reds, blues, yellows, greens. Weekends, she tries to sleep in to dream longer. Ricky looks like the baby he is in her dreams. Little smile, blue eyes, soft hair. Like his father, Matthew, who lives with her. She tries to remember what Matthew looks like. It gets harder and harder as time passes. When shes awake, blindness keeps her in the dark like sleep but without the dreams.
"Hey, Christine," Marlon, an Alphapointe staff member says, examining her pens. "Tighten this one for me."
"OK."
"You dont have a rubber grip."
"No. I did the other day."
"Where is it?"
"I dont know. I cant see."
They laugh. After all she has experienced, if blindness is the worst thing that happens to her, well then God has blessed her.
Doctors told her she had uveitis, inflammation of the eye that can be caused by a virus, fungus or parasite. In most cases, the cause remains unknown. In Christines case, blood vessels burst during her pregnancy, her eyes swelled and poof, her vision was gone, right eye removed, a hole in her face.
Through laser treatments every two weeks, her left eye for short periods can distinguish light from dark, make out wavy figures as if the world were under water. She sees Rickys arms and legs, the shape of his head. These few images she uses to fill in the blanks. She used to sink into days of depression when the treatments wore off and her world was reduced to a dark void. Now she cherishes the bit of sight the treatments offer no matter how short the time. She cleans her house, organizes her clothes, races to complete as many chores as possible before her world goes dark again.
At her latest eye appointment, doctors told her a time may come when they could no longer treat the eye. That it would do no good. That she would be blind outside her dreams. Well, OK. If that happens, it happens. She would deal with it then, not now. Not now. She will wait for her next eye appointment and hope for the best.
After Ricky was born, Christine sought work but employers were not keen on a blind ex-felon and recovering crack head with no work history. Her life is what it is, she thought. She wanted a job, diddly-squat what people thought of her. She would just apply herself harder than most.
Insert cartridge. Push in plug. Twist on metal thingamajig. Done.
Again.
"Try this," Marlon says, giving Christine a rubber grip. "It might help."
"Right on."
Christine went to the unemployment office one morning and sat for six hours. Excuse me, she said finally, Im blind, I cant see you. You can see me. Can you help me? A man told her no, he could not.
"Im still going to call you every week to see what you have," Christine said.
She did but the answer was the same: no work.
She wants to take computer classes, attend college. She enrolled in GED classes at home with the Hadley School for the Blind.
Christine was in and out of jail more times than she can count. She cant explain the absence of work in her life any other way. Shes blind. Kind of obvious. What gives it away, she jokes, my cane, my sunglasses or my missing eye? Someone will hire me, she tells herself. Eventually someone will take a chance.
Plastic tube. Insert cartridge. Push in plug. Twist on metal thingamajig. Done.
Again.
Midmorning, Christine sweeps her white and red walking cane across the floor to the office of Leslie Cauley, Alphapointes rehabilitation services manager, for the Slosson Intelligence Test, a screening exam for verbal IQ. Strong scores, she hopes, will result in more advanced job training and a good referral.
"Bitter is the opposite of acid, sharp, sweet ..."
"Sweet," Christine says.
"Name of the sixth month of the year."
"June."
Christine rubs her hands, twisting her fingers, and shifts in her chair. She hates the tests, worries about the questions she gets wrong. Then what? What will happen if she has a low score? She reminds herself that soon she will have the laser eye treatment. For a few days she will be able to see Ricky. She can do this.
"Next question?" she asks.
Christine dropped out in the ninth grade. In long enough to learn to read, write, add and subtract. Out too soon for it to matter. At least it seemed like that.
She was born in Oklahoma City, never knew her dad. Her mom moved all the time. They lived in hotels and cars when they didnt have a house.
By the time Christine entered the fourth grade, she had attended more than a dozen schools.
She ran away when she was 16 and never looked back. In 1992, she caught a ride to Kansas City with some guy on his way to Iowa. She worked day-labor jobs, prostituted for places to stay and later for drugs. No commitments, no home, no job. She was responsible to no one and nothing but her $1,000-a-day drug habit.
"Medieval and medical. Do these words have similar meaning, contradictory meaning or are neither the same or contradictory?" Cauley asks.
"Theyre nothing like one or the other."
Christine was busted repeatedly for prostitution. One night working the streets, she was stabbed 27 times and left for dead.
In 2004, released from prison once again, Christine went to a halfway house where she met Matthew, Rickys father. She found a job at a fast-food restaurant after 17 interviews and 36 applications. Within six months her employer offered to enroll her in a manager training course.
But she quickly became overwhelmed with the everyday stuff she had not dealt with in years. She stopped going to work and her parole officer sent her back to prison. She was released a short time later and moved in with Matthew.
"Which word is different? Slight, vast, massive, bulky, immense."
"Slight."
Once Christine gave birth to Ricky, she no longer thought, Ill never see again. This babys here. Thats the reality. She could sink into depression, give up and lose him or face her fears and stay straight. Her choice, a glimmer of hope against the dark.
Christine wakes up at 4:30 a.m. on weekdays and bathes Ricky; Matthew will drop him off later at St. Vincents Operation Breakthrough for day care. As Ricky plays on a blanket, Christine runs her hand along the living room wall and follows it into her dilapidated kitchen. The landlord signed her and Matthew to a five-year lease and charges $600 a month, two to three times as much as other rentals in her Northeast area neighborhood. Like employers, prospective landlords arent enthusiastic about ex-felons. She and Matthew took what they could get.
She curls a finger into a cup and pours coffee until it licks at her finger. She normally waits for Share-A-Fare to pick her up between 6 and 6:30 for her 7 a.m. shift. This morning, however, they will drive her to her 9 a.m. eye appointment. She anticipates Ricky swimming before her in the blurred vision the treatments give her. She will see him again, after so much time, so much time.
"Is this a coat?" she asks Matthew when she hears the beep of the Share-A-Fare cab.
"Yes."
She uses an electronic color detector to determine what clothes to wear. It often misidentifies colors, but consistently, so her clothes still match. She shrugs on the black coat over her jeans and pink sweater.
"Seen my keys?"
"No."
"Well I havent either. I dont know which is worse. Being blind or being blond."
Christine stands in the elevator, feels it rise to the Truman Medical Center eye clinic. She wishes she could take stairs. Something about elevators. Maybe its an equilibrium thing, but they confuse her. She takes a deep breath every time she gets off one as if she were about to plunge over a cliff.
For her first eye appointment, she stood around for minutes by the elevator. No one offered to help, so doggone it she decided to ride it alone. She poised a finger, aimed and jabbed at what she hoped was the right floor. Unable to read Braille, she hit the emergency button instead. Im fine, she assured the security guards who came running. I just cant see.
"Its looking OK," ophthalmologist Abraham Poulose tells Christine, examining her left eye through a biomicroscope.
"Can we laser it today?"
"Better wait, Christine," Poulose says. "Blood vessels look a little angry."
His words dissolve the image she has of Ricky and she gropes for alternatives.
"You want me ... to do ... my eye drops ... every hour?"
"I know if I do it, it will kick up some inflammation," he says. "Its best if we hold off."
She turns away, looks up at the ceiling and strains in her chair as if against invisible restraints.
"I see Ricky. I can tell light. I can tell colors. I look forward to those few days."
"I know youre not thrilled."
"You did tell me there might come a time we cant do it anymore. But I didnt think it would be the next time I came."
Her eye rims with tears. She wont feel handicapped. She wont get stuck. She shakes her head against the enveloping darkness.
"It will be OK," she says and draws a deep breath. She settles in the chair. "Im not going to think negative. Ill drink a Dr Pepper. Ill be OK."
Plastic tube. Insert cartridge. Push in plug. Twist on metal thingamajig. Done.
Again.
A week after her eye appointment, Alphapointe staff told Christine she scored "high average" on her verbal IQ test. Oh, my, she said, her Southern twang rising almost to a song. Oh, my. What do you know?
She will hold off on face-to-face interviews until doctors provide her with a prosthetic eye. People make decisions based on appearances. An ex-felon, recovering addict, blind, no work history. She has enough going against her. It wont help if she shows up missing an eye.
Blindness and her past have created some hurdles, nothing more. She made mistakes, did her time. She knows that wont be enough for some people. Perhaps most people. But from a few, she expects what she now gives herself. A fair chance.
Plastic tube. Insert cartridge. Push in plug. Twist on metal thingamajig.
Done.
Once Christine gave birth to Ricky, she no longer thought, Ill never see again. This babys here. Thats the reality. She could sink into depression, give up and lose him or face her fears and stay straight. Her choice, a glimmer of hope against the dark.
To reach Malcolm Garcia, call (816) 234-4328 or send e-mail to mgarcia@kcstar.com.
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Sunday,March 4, 2007
Edition: METROPOLITAN, Section: LOCAL, Page B1
SETTING HER SIGHTS | Blind woman longs to see baby
ST. LOUIS | Pick a dream.
Christine McDonald ponders this. Lying on a gurney at Barnes Retina Institute, an intravenous line in her arm, 11 a.m., thinking. Despite her blindness, her eye hurts from the bright lights her nerves can still detect, and she turns her head one way and then the other. She has too much energy, can't relax, mind racing.
Christine lost her sight in June 2005 while she was pregnant and her right eye was removed. She has never seen her son Ricky. Perhaps she never will. Her doctors won't make any promises. Still she hopes. She sees Ricky in her dreams. She tosses and turns picturing what he looks like. The dreams put a face behind his giggle, behind his little belly laugh. He will turn 1 year old March 12.
Some people say he looks like Matthew Simon, 32, Christine's boyfriend and Ricky's father. Christine has vague memories of Matthew's stocky features and brown hair and even less of her own. She was never one to pause in front of a mirror.
"I hope after this you're your old self," Matthew teases her. "You're mean now."
She admits she has little patience, especially with bus drivers who pull away from the curb before she sits down.
"Hello, I'm blind. It takes me a little longer to sit down, thank you!"
And with salespeople who talk to Matthew instead of her, although she more often than not asks the questions.
"Hello, I can't see, but I can talk!"
Determining whether Medicaid would cover the costs of the operation was a struggle that took months. Her blond hair fell out. She chewed her nails until her fingers bled. When it finally was approved, she wept.
Pick a dream.
Barely an hour ago she was pestering Matthew in their hotel room as she readied herself for the hospital.
"You have the paperwork?" she asked.
"Yes."
"I have to have clean socks. If something goes wrong and I have to stay overnight, what will I do with dirty socks?"
"You're kidding."
"You have Ricky? Where's he at?"
"Playpen."
"What's he wearing?"
"Adidas."
"What color?"
"Blue and red."
"Cute?"
"No. Ugliest thing he owns."
"Is not."
Christine stood, adjusted her gray sweat suit and breathed deeply. Matthew offered his left arm. She wants to see the sky, trees and dandelions, all the things she took for granted before uveitis, an inflammation, destroyed her sight. Blood vessels burst during her pregnancy, her eyes swelled and she lost her vision.
"It's time," Matthew said.
"I know."
"You ready for this?"
"I'm holding my heart."
When she checked in this morning, surgeon Kumar Rao reminded Christine that he could not guarantee the return of her sight.
"Tomorrow, I expect it to be very blurry. I don't know how much vision will come back."
"If I only get to see Ricky for a few weeks, I'm OK with that."
An anesthesiologist entered the room.
"Do I need to count down?"
"Nope," he told her. "Relax. Pick a dream."
Christine does not dream under the anesthesia. She recalls Rao talking to her when she woke up after the four-hour surgery, but when he leaves the recovery room she can't remember what he said. She wears a patch over her eye and her head lolls to one side. She knows someone went for Matthew. She waits until she recognizes his footsteps, feels him enter the room. He says nothing.
Christine had a lot of scar tissue, Rao had told Matthew in the waiting room. The retina was detached, and he had put it back in. He could not remove all of the scar tissue, however. He had inserted an implant no bigger than a pencil point to decrease inflammation. Christine should be able to see light, but Rao did not know how much else. He would see her again in the morning. Take her back to the hotel, he told Matthew. Take good care of her.
"Matthew?"
"Yes, Christine."
"I don't know if I can see yet."
In the morning, Rao guides Christine into an exam room and shines a light in her eye. She jerks back in her chair, startled. She sees it. Too much! It hurts! He turns the light down. Nothing now.
"Will I see?"
"We don't know yet. We've given you the best chance yet."
Rao waves his right hand in front of her face. Christine sees movement out of one corner of her eye. He wiggles his fingers, but she can't distinguish them.
"Will I ever see facial features?"
"I want you to, but we have to be realistic. I'm pleased you see more light, but we may not get more than that."
Her chin sinks. She should be grateful for whatever she gets, but she had her heart set on more than detecting light. She lets out a long breath. Her head throbs.
"That's OK," she says, careful to maintain the balance in her voice. "I'm OK with that. I may not retire my cane after all."
"We'll see," Rao says.
Pick a dream.
Complete her GED. Find a job and get off disability. Maybe become a disc jockey. Radio is blind-friendly.
Christine gives a short laugh, the sound fading almost immediately in the quiet living room of her Kansas City house. It's Wednesday, and she has been home four days. She will continue to see Rao and hope for the best.
"I need to sign up for Braille."
She listens to Ricky crawling near her feet. Matthew stands in the kitchen cleaning dishes. She sees the foggy shine of a hall light wavering and unresolved. She hasn't a clue what the couch she sits on looks like.
"Pink?"
"No," Matthew tells her. "That was the other apartment."
Perhaps a social service agency would hire her as a receptionist. No, no. She won't do anyone any good sitting behind a desk unless it's for a law firm where she can make connections. She wants to start a center to assist ex-felons and disabled people. She has done pretty well advocating for herself. Why not others?
Christine lifts Ricky to her lap. He takes her hands and claps them. She waits for the moment when she catches a fleeting blur of motion.
"There you are," she whispers in his ear. "There you are."
The story so far
The story of Christine McDonald, 37, who lost her sight in 2005 and whose right eye was removed, appeared in The Star last October.
Christine, who was born in Oklahoma City, never knew her father. She ran away at 16. In 1992, she hitched a ride to Kansas City and began to prostitute herself for places to stay and later for drugs. She has been in recovery for two years.
After the story appeared, readers offered help, including one anonymous donation of $3,000.
Her physician suggested she contact Barnes Retina Institute in St. Louis. On Feb. 22, doctors performed the surgery to try to restore some of the sight in her left eye.
To reach Malcolm Garcia, call (816) 234-4328 or send e-mail to mgarcia@kcstar.com.
Photo Caption:
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PVCC: Spectrum
Spectrum
Student Profile:
Christine McDonald's Journey for Sight
By Bridget Komoroski
Christine McDonald, a student at MCC - Penn Valley, has truly lived an unconventional life. After struggling with addiction since 1988, McDonald ran away
from her hometown Oklahoma City in 1992, and hitched a ride to Kansas City.
The next 17 years, McDonald was a crack addict. She was homeless, having to sleep in parks, alleyways, abandoned cars, or wherever she could find the slightest
bit of warmth. In and out of prison six times, and turning tricks to feed her habits during that seventeen year span, she finally decided she wanted more
for herself and for her life.
With no high school diploma and no resources available to her, six-time convicted felon McDonald set about trying to pull herself up from rock bottom.
After many attempts to clean up her life, McDonald finally found work. It was at this time she met a man and became pregnant. The two moved into an apartment
together, and life was bliss for McDonald.
But in a twisted turn of events, toward the end of her pregnancy McDonald lost her vision due to Vogt-Koyanagi-Harada Syndrome (VKH). VKH is a very rare
immunity-mediated disease which attacks the middle layer of the eye, and is characterized by uveitis, an inflammation. Eventually her right eye had to
be removed.
Christine McDonald
Christine McDonald
Her boyfriend - and father of her baby boy, Ricky - decided that life was too difficult taking care of a child and a woman who had just lost her sight.
He chose to end the relationship and move out. McDonald was alone again, but this time with no vision and a new child.
Filled with anxiety, yet trying to deal with her blindness and be a good mother to her child, McDonald became agoraphobic and spent most of her time in
the beginning at home, taking care of Ricky.
"Here I was with this little baby, and blind and I was scared to leave my house," said McDonald. "It was scary; I didn't think I could do it. I used to
cry about it all the time. It was like, 'Oh my God, I can't raise this little person!'"
From the time Ricky was born, McDonald focused all her attention on being the best mother she could. She refused to let her vision loss discourage her.
McDonald admits that on rare occasions, when Ricky was very young, she would lose him from time to time; and when she tried to teach Ricky to walk, both
of them did a lot of running into things. She says she has been blessed to have some good support within her community.
"I'm a single, blind mom and I've only lost him a few times and put food in his ear once," McDonald says with a laugh.
The Kansas City Star heard of McDonald's story and published an article about her in their October 29, 2006 issue. The article triggered an unexpected,
anonymous $3000 donation to help with medical expenses from an attempt to restore vision in her left eye at the Barnes Retina Institute in St. Louis.
This was McDonald's first glimpse of hope that she might one day have her vision partially restored and be able to see her son for the first time. However
the attempts failed, and McDonald was again left wondering if she might ever see again.
. "I want to be a good mom, I want to be a full mom, a complete mom.... I want
to be able to play [with Ricky]... I hear him giggle and run through the house, and I want to see it," said McDonald.
Meantime, she will continue her education, work toward accomplishing her career goals
and, of course, provide everything she possibly can for her son.
McDonald hopes to get certified to work with addiction and mental health issues in the homeless community. She wants to offer guidance and resources to
anyone struggling to get back on their feet and make a life for themselves. She already reaches out by helping to feed the homeless. She says it has been
her own life experiences which have provided her with the passion and drive to help people and move forward.
Blindness has made McDonald stronger, more compassionate, empathetic, and humble. It has taught her humility and responsibility. Amazingly, McDonald sees
her vision loss as a blessing for all it has taught her.
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My Homeless Days: Wow, what a challenge for me, after more than a decade of homelessness, not the type where one is in an institution, a shelter, a bed, warmth from the cold, food to fill the hunger pains, safety from the darkness and all that lurks in it. Electricity was not readily at hand, at least not for me. So for many years there is emptiness with society growing and myself standing still.
A song I could relate to was difficult, even after my blindness, I found It hard to listen to music, remembering past experiences, during my sighted life, mostly harsh, cold painful memories, yet sighted memories none the less, Yet, determined to make my life work and prove to myself and the world, there can always be a brighter tomorrow no matter how bad your life is, no matter how poor your choices, and no matter how long this experience has endured in your life.
Humming tunes while cleaning my house, picking up after an eighteen month old, as a single, blind mother with no one sighted in my life, I think I found a song that says a lot about my life, at least a past part of it. "I'm With You" (Those, Damn Cold Night's) by Avril Lavigne. Curled up no shoes or coat, I remember the bitter cold winter wind, bare legged, in a skirt, too tired to get up from the spot I found beside a cold brick building alone. No one bugging me, no one wanting something from me, I was not willing to give, just rest, sleep, a friendly word, a rescuer would be nice, "Could some one find me?" the concrete so damp, the coldness causing my frail body of 88 pounds to ache, yet, my head against a vent, where part of my body found warmth- the brisk aroma of ground coffee beans, bring to me a comfort of sorts, occasionally overpowered by the stale, musty smell of urine reminding me of my reality.
In this song, I hear the insistent, almost demand of "Don't know who you are, but I am with you, I am with you." I have felt this, just needing to belong and not caring to who or what. "Isn't anyone trying to find me? Won't someone please take me home?" As I hear this almost reliving the desperation, wanting a kind person, not wanting me as an object, a thing, just allowing me to belong, to keep me safe, warm, see me as a person, as I think of this; I must remember to me they were too faceless, nameless, just there for me, just as I was to them.
Today I cherish, even savor my meek house, a bed to sleep, safety from weather, and people. Hearing this song, I will not forget how far I have come even being considered "too far gone." Today, I sit with much gratitude and humility and feel it is a privilege to be in college.
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